Hey there :) I just wanted to write this to say I have finally started riding again! It's not a lot, and I have to work very hard to ride slow enough to keep my heart rate low enough but I still love it!
For anyone wondering, I've gone to Dallas 2 different times now for a week of doctors, testing, and treatment. We have made some progress on my POTS/dysautonomia in terms of improving my heart and therefore my ability to get out of bed and do stuff. I also found out i am gluten intolerant, so I am exploring a whole new world of food. Overall I am feeling quite better on medicine (florinef!) and exploring bio-feedback treatment. I was able to successfully finish out the semester at school which was great.
So right now I am just waiting to see a geneticist to confirm my doctors suspicions of a condition called Ehlers Danlos Syndrome Hyper-mobility type. This is a collagen related disorder, so it can cause problems and symptoms everywhere in your body.
So thats all I suppose, hope everyone has a merry christmas and a healthy new year!!!
